Today I baked 2 cakes for a school friend. She is amazing and runs a non profit pre school and aftercare at one of the private schools in our area. I am so grateful to her as she often gives me orders to bake birthday cakes for her 'children'.
Anyway she came to collect them this afternoon and asked after our daughter. We chatted a bit and I had my say about other illnesses and she asked me how she feels about possibly never receiving lungs. To which I responded with tears in my eyes that she is okay with it. When she had to sign her living will, she sat with the pen in her hand for ages before I turned her and saw tears running down her cheeks. Then she blurted out to me, 'promise me that if there is nothing more they can for me, that you will give me a fighting chance and you won't just switch off the machines.' I am reminded of how fragile her life is. Living with CF where there is no cure....That is what she deals with.... that is her life every day....
